Skip to main content

Another Day In The Life

I'm debating on stopping All arthritis medications until I am given the 'all clear' to resume my iv treatments. My body is having a par-tay with side affects since going back on oral medications as of the beginning of this year and I've about had it. I was always in that 1 or 2% of folks who experienced the rare side affects or allergic reactions to medications, but now, for some reason, I'm experiencing the more common, and even severe, side affects on a regular basis. Dizziness, vision problems (extreme blurriness and blind spots), histamine reactions, loss of equilibrium, drops in blood pressure, kidney function and thyroid function, headaches, ringing in my ears, increased fatigue and 'brain fog,' are just several of the things I've been dealing with throughout. It's scary, defeating, overwhelming, maddening & debilitating. And even those words aren't adequate enough. It also makes me wonder if now I'll react negatively to the iv medication if I go back on it. Hopefully my vision hasn't been permanently damaged. I can't think clearly enough, nor do I have the energy, to figure out another direction to go in. But that's where I'm at right now in this department. (You must have guessed by now something is amiss since I've been posting more photo's than words as of late). I hope you're all doing well!

Comments

Holli said…
Sorry to hear you're going through all that.... it's so hard.... I feel for ya!
TeamQuickBlade said…
that dizziness and vertigo sensation doesn't seem like a big deal until you get it! it is amazing how much it hinders your day to day and makes you feel like crap!!! i really hope you can find some kind of medicine balance soon! i know you've been struggling with so many side affects for WAY too long!!!
Mrs. Fry said…
Oh Jo, I have noticed that you have been quieter than usual. I am so sorry. Get this fixed soon.

I was thinking of you today. I went to Bartram's Garden, a 45-acre property right next to the projects in Southwest Philadelphia. It was really rather lovely. Much of it very natural, but amazing that it has existed for almost 300 years.
Lydia said…
Hugs from California. Once every 6 weeks I go with a relative to the big city (Pasadena) so they can take the car pool lane to get his Remicade Treatment. What a Godsend.

You will be in our prayers.

Thank you for stopping by my California garden.
Thanks everyone!!! Your kind words are greatly appreciated :o)

Brenda, I have been working on this with my doctor for months - it's a process of trial & error :o)

Lydia, Remicade is a God-send and I pray I'm able to go back on it with success! Your garden is lovely, thanks for stopping by mine!

Popular posts from this blog

An Enchanted Garden Party

Welcome to my post! To visit other participants, please head over to the Practical Magic Blog Party 2010 blog. I must say that while I think Practical Magic the movie is adorable, I think the novel is incredible. And that is where I gleaned my inspiration from for these festivities. Gardens are mysterious, magical and enchanting, don't you think? Now follow me out into the garden, I have everything all ready for you, including music! (Turn your volume on). *Update: Music has reverted to my regular Fall soundtrack, 9/28/2010* For all of you non Practical Magic Blog Party folks, head on over to NJ Through My Eyes where I've posted 2 new slide-shows today; one is a preview of a new project I'm working on!

A Walk Through The (Dis)Enchanted Forrest (Halloween Party Post)

Welcome & thank you for visiting my post! For more Halloween fun today & throughout the weekend, visit A Fanciful Twist . For more Halloween & Autumn Fun, check out my "Autumn Tuesday" & "Halloween Thursday" posts by clicking on their labels in the left hand column. ~Happy Halloween & Pumpkin Blessings! *Update for those friends wondering, I put this together prior to surgery yesterday to make sure I would be able to post it for today! (Though it didn't post at 12:01am like it was supposed to). Anyhoo, I'm home and resting (uncomfortably). Surgery went well, my kidney tube and stone are gone! I have an internal stent on the left hand side but I'm okay with that because it comes out in the doctor's office in 2-3 weeks (no back to the hospital) and especially because it meant they could take that nephrostomy tube out! (The last nearly 2 weeks of that 15 weeks was rough with that thing, my body was simultaneously trying to heal aroun...

Not Exactly Music To My Ears and Acceptance

Went to my 'every 6 weeks' follow-up doctor's appointment with my Rheumologist yesterday morning. Apparently my heart palpitations/racing (not often, though enough to be noticeable), vision issues (blurriness and discomfort) and muscle cramps (too often & not dehydration) are "disease progression." Not exactly music to my ears I can tell you that much. We discussed my pain & swelling levels (back on the rise through the last 2 iv treatments) and agreed that my iv med should be increased from 400mg every 8 weeks to 500mg every 8 weeks. (This brings me closer to the area of 800mg, which Dr. A feels would be the max dose for me, and the fact that I'm getting closer to that mark scares me). One good thing to note, my blood pressure was "normal" for (at least) the 3rd follow-up in row and without meds, so at least that's one less thing for me to worry about (though it's like a needle in a hay stack really). I'm always on the verge ...